What’s the best thing about having MD and being confined to a wheelchair? A. I tried really hard to think of something for this. I thought about the fact that people do everything for me, but that’s not as cool as it sounds. If I have an itch and everybody is busy, I have to [...]
Archive for March 2008
The Perks
March 27, 2008Fear and Rolling in Las Vegas
March 24, 2008“YOUR SON IS GOING TO COME BACK WITH HERPES!” Pedro has always had the tendency of revealing too much information to my mother. My face turned three shades of red. I looked at my mom, expecting to see her mouth agape. She just smiled and gave a disapproving shake of her head. She tries so [...]
What It Feels Like
March 20, 2008Q. Does it hurt? What’s it feel like? A. This is tough. The disease itself doesn’t hurt, but the things it causes do. For example, Scoliosis is a common side effect of MD, so I’m in constant back pain while in my chair. I also get numb legs all the time, so I have to [...]
The Tip
March 17, 2008I liked to play soccer when I was a kid. I would take off my foot rests and push the ball around with my feet. Even though this wasn’t safe, my parents let me do it because I enjoyed it and it made me feel normal. I was even on the soccer team as a [...]
MD and Me
March 13, 2008Q. What is your handicap? A. I have Muscular Dystrophy (MD). It affects the muscles by making them progressively weaker. This means that I have minimal use of my arms and legs and I use a power wheelchair to get around. In addition, I have a tracheostomy and use a ventilator to breathe, as the [...]
Target, Underwear, and Prayers
March 10, 2008My sister had driven me and my nurse to Target. It was one of my first times out without my parents and I was ecstatic. “Imma buy underwear and chips and a game and one of those big bouncy rubber balls that bounce a lot. Those are AWESOME.” I told them as we entered the [...]
Meeting the Public
March 10, 2008Q. How are you really treated by the general public? A. Most people just keep to themselves. But, occasionally, a person will come up to the person with me and start talking about me when I’m right there. It infuriates me to no end. I mean, I know I’m not the most handsome guy in [...]
Welcome to LoveOnWheelz.net
March 8, 2008I’m an 18-year-old (19 now) kid with Muscular Dystrophy living in San Diego. Having MD means that my day-to-day life is very surreal compared to that of most normal people. I say “normal” because I know that I am different than 98 percent of the population, no matter what my family tries to tell me. [...]
