Sometimes what people consider mundane is interesting in my life. Like showers, for example. Showers consist of a nurse, a parent, an Ambu-bag, a <a href="shower chair, and me. Most of you stopped getting showered by your parents by ten. Let me tell you having your mom or dad wash your pecker can be awkward. [...]
Archive for May, 2008
Shower Talk
May 29, 2008There You Are Using Your Lungs Like Suckers
May 27, 2008Q. You mentioned some side effects of MD are problems with sitting and eating. Is there anything else?
Bedside VentilatorVent HeaterA. I use a ventilator 24/7 because I can’t breathe by myself. My bedside ventilator pumps the air through the tubes into my lungs via a trache tube. I don’t really know what [...]
Parents: The Anti-Drug
May 15, 2008When you were 18 what rules did your parents have? A curfew? Keep your room clean? No drinking, probably. They all seem pretty reasonable, right? Did they also ever try to force to do something you didn’t want to do? Something you felt you should be able to decide for yourself? You probably told them [...]
Fine Dining
May 13, 2008Sorry for the hiatus there. I was having some issues getting these pics, due to the fact I had no camera.
Q. How do you eat?
Syringe, tube, and feeding pump.
A. It depends. I can eat food by mouth when I get cravings, but not enough to be nutritious.
99% of the time, I use a feeding [...]
