No post this week. Check back next Thursday.
Pick Up Chicks
Posted August 4, 2011 by hotwheelzrcCategories: Uncategorized
Being disabled has it’s advantages: good parking spaces, free drinks at bars, having people do everything for you,. But it also has drawbacks and the most bothersome are not always obvious. For example, it’s gotten harder to talk as time has gone on. My voice has gotten softer, some letters are harder to enunciate… just little things that make it harder to communicate.
What bothers me most about this is how much it messes with my game. Do you have any idea how hard it is to flirt with girls that can’t hear or understand you? I hate it when I have the perfect line for a girl and I can’t quite deliver it.
Like this one time when I was downtown walking back to the car. There was this incredibly cute girl walking with two friends. Normally I wouldn’t know what to say, but I had the perfect in with this girl. She was wearing a walking boot and noticeably limping. I had the perfect line for her. I’d drive up to her side and say, “Hey sweetheart, need a ride?”” It was perfect. I could see myself delivering it perfectly and slowly rolling away in victory with her phone number in hand. I’d be Mr. PimpWheelz.
But that didn’t happen. It didn’t happen because I couldn’t talk loud enough and I couldn’t catch up to her. It makes me wonder how often I might have talked to or befriended someone but couldn’t. How much easier it would be if I could just talk to people and they could understand me without needing someone to translate everything I say. How the hell am I supposed to tell a girl that she should get on my lap and ride me like a crippled Sea Biscuit? People get all uppity about it, “Oh I’m not gonna say that!”. That’s the thing about it: I could get away with some ridiculous shit with girls. The waste of potential makes me angry.
I’m okay with not walking, not breathing and needing to wear fucking Depends. I’m not okay with having to struggle to communicate with people. Why can’t I have this one tiny fucking thing? It’s just the hand I was dealt, I guess. Still, I wish it wasn’t. I wish that one day, I’ll see a cute girl in public and she’ll be reading something like Slaughterhouse Five all by herself. Then I’ll go up to her and I’ll say, “Hi” and she’ll understand everything I say. Maybe she’ll like me or maybe she won’t. It won’t matter. It won’t matter because, for that second, I’ll be normal.
UCLA Part 4- Bonus Video
Posted July 1, 2011 by hotwheelzrcCategories: Uncategorized
Everyone meet Kumba:
UCLA Part 4 – Nurses Be Crazy
Posted June 30, 2011 by hotwheelzrcCategories: Uncategorized
So do you have kids?” asked Amber. We were out with our new day nurse, Karen and she was trying to get to know her.
“Yes.”
“Oh cool, how many?”
“Three.”
“Boys or….?”
“All Boys.” She said, quickly getting back to looking out the window and avoiding conversation. Me and Amber had been trying to talk to her all day, but she seemed angry at… something.
“Maybe she was just having a bad day.” I said after she left.
“Hopefully. Maybe she just doesn’t like you.”
“Psh, everyone likes me.”
“The thing I like about you is how humble you are.”
“I know, right? I’m like Jesus.”
She rolled her eyes, “Anyway, we’ll give her another day to see if she’s any better.” So we did, but we just couldn’t turn that frown upside down. I think our breaking point came when we stopped at a KFC and she assumed that we were going to pay for her popcorn chicken. That was the only nurse that we just didn’t like. And I’m pretty sure she didn’t like us either.
Next up was Tanya. She was just filling in during the day until we found someone. She eventually moved over to weekend nights.
Weekend nights have always been problematic. It’s always hard to find people to work on the weekends because no one wants to work weekends and no one in their right mind want to work weekend nights..
Tanya seemed to know what she know she was doing. After all, she’d been a nurse for over twenty years and she’d worked for a lot of famous people before. She made sure to tell you all about it too. She would tell you all about the Beyonce’s grandma or Johnny Depp’s uncle. Not to the point where she was annoying, but just enough to make sure you knew about it..
The first confrontation between Tanya and Amber came when we were trying to watch Lost one Saturday night. Our room is set up in such a way that we have to move all kinds wires and stuff over the desk that the nurses use just to watch TV. So that’s what Amber started doing. Apparently she didn’t do this gently enough and moved all the wires over her laptop .
“Excuse you, child!” she said indignantly
“Oh, I’m sorry. I have to move it so we can watch TV.”
All Amber got was an indignant stare back.
“Here, you can sit in this chair.” she brought a chair in.
“I don’t want to sit in this chair, it’s dirty.”
“What do you mean it’s dirty?”
“I mean, it’s DIRTY.” Amber tried to wipe it off with a cloth, but, apparently, the chair was covered with AIDS or something because she elected to sit on the floor. The floor was surely AIDS free. And the whole time we watched lost, she shook her head and muttered disapprovingly. But we chose to ignore it, much like you ignore a child throwing a tantrum.
It wasn’t until Amber turned off her light to go to sleep that she came up to me. She spoke just loud enough so Amber could hear.
“Child”, she told me, “Do you know how old I am?”
“Uh… 23?” I said, trying to soften her up.
“But no, I’m 40 years old. And I expect a certain level of respect. People these days have no manners. ”
“They think that just because I work for them that that gives them the right to treat me however they want. But I don’t take anything from no one.”
“Um… Alright.” I said awkwardly.
“And I don’t appreciate it when people are rude to me.” I just nodded along, hoping that she wouldn’t cause a scene at 1 o’clock in the morning. Thankfully, she didn’t and the rest of the night went smoothly.
“Man, Tanya just won’t let something go will she?” Amber told me the next day.
“Yeah, she’s…”
“Stubborn? Hard headed? Sensitive? Should I go on?”
“No, I think you pretty much covered it.” I said, trying not to laugh.
“I think I’m just gonna go watch a movie when she gets here. I want to try and minimize the awkwardness.”
“Sounds like a good idea.”
“Hmm, your phone is dead.” she noted, “Have you seen your charger?”
“Umm… yeah… no.”
“That’s weird, it’s not in it’s usual spot.” The charger was nowhere to be found.After a while we stopped looking for it.
Tanya came, Amber left and it somehow came up that my charger was missing. Tanya did not like this.
She then made it her personal mission to find my charger. She looked in the drawers, in the little file folder next to my bed, under my bed, in the velcro pockets we hung on the door and had no luck. Finally, she spotted what looked like a charger on Amber’s dresser.
“Is that your charger?” she asked.
“Umm… maybe.” She went over and tried it with my phone. It worked!
“Hey Amber, guess what?” I asked excitedly as she came in.
“What?”
“We found my charger.”
“Where was it?”
“Over there on your dresser” replied Tanya.
“Okay, first of all, don’t touch my stuff.” said Amber.
“Second, that’s my charger.”
“Third, seriously, don’t touch my stuff. Don’t touch my stuff.” She repeated this about five times.
“Girl, you better calm down. I didn’t touch your stuff.” said Tanya.
“Oh my god! YES YOU DID. You just said you grabbed the charger from my dresser!”
“Girl, I know you’re used to being spoiled, but you better adjust. This is a very small space and I was looking for his charger.” I’m not gonna use all caps, but everything from this point on was yelled. Very loudly. At midnight in a dorm.
“I know you didn’t just call me spoiled.”
“Yes, I did. You’ve been nothing but rude to me. So you better step out and calm your ass down.”
“Excuse me? You are not telling me to get out of my own home!”
“You better calm down girl, telling me not to touch your stuff. You think just because I’m black that I’m a thief?!” She got real close to Amber.
“Oh my god, you did not just bring out the race card. Race has nothing to do this. And you need to back off”
“Why? You want to hit me?”
“What?”
“You want to hit me? Go ahead, hit me!.”
“I’m not hitting you. I’m done with this conversation.”
“Hey… um… Tanya why don’t you go outside and take a break?” I interjected.
“Alright alright.” She went outside.
“I’m sorry Raul, I’m trying to move on, but she just won’t stop.” said Amber.
“I know, I know.”
“I’m just gonna go to bed and we’ll deal with this tomorrow.”
By the time Tanya came in Amber was already in bed and the light was off. It seemed like everything was over, but it wasn’t. When I sleep, I use a sensor on my finger that monitors my oxygen. If my oxygen gets low the machine alarms. Problem is, Tanya couldn’t find the cord for the machine.
“Look in the velcro pockets on the door, that’s where it always is.” I told her.
She looked and couldn’t find it. Then she started ranting and raving about how my assistant needed to get up and help her look for it. Then it turned into how Amber was neglecting me and putting my life at risk. Finally, she decided she needed to go outside and call my social worker. Amber got up, looked in the velcro pockets and pulled out the cord for the monitor.
“IT WAS RIGHT FUCKING THERE!” Amber yelled at Tanya as she came back as she crashed back into bed.
The next day we got a call from the agency, “Hey guys, Tanya wants to give it another shot to see if you can work things out.”
Amber looked at me with a panicked look in her eyes.
“Yeah… I don’t think that’s a good idea.” I told them.
“Thank you” Amber mouthed.
What followed after Tanya was a series of sleepers. It’s exactly what it sounds like: Nurses that sleep on the job and have no qualms about it. First there was Mufta, a lanky nigerian man with glasses and a pointy head. I liked to refer to him as Muffasa. Muffasa would fall asleep in the chair next to me while eating sunflower seeds. It didn’t matter how loud or for how I called his name, he never woke up. So I did what I felt was the safer option; I didn’t sleep. At some point, I decided I had had enough. My voice might not have been loud enough to wake him up, but I knew my phone was plenty loud. I also knew that, to the unsuspecting bystander, it can be quite startling. On the very first ring, he let out a high pitched scream and jumped out of his chair. I giggled and quickly hung up before it woke Amber up. I thought he would stayup for the rest of the night, but he fell asleep 15 minutes later. He didn’t wake up until 6:45 am, fifteen minutes before his shift ended.
He wasn’t the only one that did this; There was Pat, a lady so old that it hurt to see her. You expected her to turn to dust at any moment. She liked to tell me about her loose bowel movements and how she had to wear depends. She also demanded a 1 hour nap during her shift and took it even though we said no.
There was Kumba who showed up in pajamas and with blankets. She would wrap herself up in her blanket and nod off for hours at a time. She did it so brazenly that Amber and I decided to film her sleeping. When we confronted her about it she insisted on asking me if I wanted her to leave that I finally caved and said fine. We were left without a nurse that night and Amber and I didn’t sleep that night.
Finally, there was Peace who, despite multiple warnings, kept falling asleep and had the nerve to get mad at us when we told her that it couldn’t go on. We decided that she was fired at the end of the week, she didn’t show up on her last day.
In the end, there was Torie. God bless that woman, she not only didn’t fall asleep, but she knew what she was doing. She always came on time. We had finally found a good, reliable night nurse.
It wasn’t as hard to find a day nurse. Her name was Cori and she could lift me by herself. This was awesome because it meant that Amber didn’t have to be there to get me in and out of my chair. It gave both of us the freedom to do our own thing during the day. The only problem with Cori was that she was always late. Not 10 or 15 minutes late, I’m talking 45 minutes to two hours late. She was always stuck in traffic or having car trouble, but we put up with it because we knew what was out there and, hey, she was awesome when she was there. We had to learn that this was not the right attitude to have and we had to learn it the hard way.
On the TeeVee
Posted June 23, 2011 by hotwheelzrcCategories: Blog
So through a little and some connections I was able to get on Telemundo and tell them about my fight against the state. The video is in spanish, so if anyone knows how to put english subtitles on it and is willing to do it it’d be greatly appreciated.
Anyway, hopefully this is just the first of many and it’s picked up by more news outlets:
The Government: Fucking People Since Forever
Posted June 6, 2011 by hotwheelzrcCategories: Blog
It used to be that I always gave the government the benefit of the doubt.
That, for the most part, they were not incompetent dehumanized assholes. But rather good people trying to do the best they could to serve their country. Today I learned otherwise.
I got word today that I lost my case against MediCAL. The state has decided that I don’t need 24 hour nursing. That, despite being dependent on a ventilator and eating through a tube in my stomach, I only need 12 hours of nursing a day and it’s up to my family to take care of me the rest of the time. If I don’t like this arrangement, I can choose to go in a nursing home. Which, by the way, is terribly understaffed and underfunded.
I was always told that America was the land of the free. Everyone had a chance to make something of themselves. My family moved here because there was better healthcare and more opportunities for the disabled. But today, that is longer the case.
See, they don’t expect people in my situation to do anything with their lives. They’re gonna give you just enough help for you to exist, but not really enough to live. They don’t really expect you to want to make something of your life. They want you live a, hopefully for them, short life and hurry up and die because you’re taking money from the system. They don’t really care about helping you out if the numbers don’t look good.
I don’t know how it got like this. The intentions were good, certainly. But somewhere along the way, the government went from an entity by the people for the people into a large faceless blob of paper pushing bureaucrats completely disconnected from the very people it’s supposed to serve.
I don’t know how I’m gonna do it, or even where to start, but I will fight with every ounce of my being, every drop of blood and every bead of sweat to get the care not only that I need, but thousands of others in my position need. I will fight for thousands of others that can’t fight for themselves and I will show them just what I’m capable of.
I will not stop.
I will not give up.
And I will not let them get away with this.